World map of Cardiomyopathy


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Cardiomyopathy stories


I AM STILL HERE BECAUSE MY SON DIED UNDIAGNOSED BEFORE THEY KNEW :-(


His were the first pair of newborn eyes that I gazed into during those early seconds after his arrival into this world and the first time I knew love like I had never known before. I knew that being a mother would forever be the most important thing ...

Views: 1065 Dec 19, 2015, 7:28 PM by Cyndi Henry

MATT'S CARDIOMYOPATHY STORY


My cardiomyopathy story starts in 1969, at the age of 5, when my 20-year-old brother Michael died, having made a short dash from work across a London road to meet our elder brother Paul for lunch.   I say my story starts here, but I have recen...

Views: 723 Jan 25, 2016, 8:02 PM by Matt Erlanger

DNA DENMARK


My disease is inherited from my Danish father ( because that DNA have ony been found in Denmark ) and one of my daughters has it too

Views: 643 Jan 26, 2016, 3:23 AM by Lola

HCM AND ME


I was diagnosed with HCM in 2011 after an episode of heart flutter at end of 2010. Elected to have a SICD fitted which occured on May 23rd 2013. Never had a SCA but fitted with device because of risk factors including losing my father to a heart prob...

Views: 591 Jan 26, 2016, 9:48 AM by Mark

HEATHER'S STORY


 I was officially diagnosed at the age of 14 in 1987, but I believe I had HCM long before that.  I have a strong family history of people with HCM. Does that I know of are my grandpa who died at 64, which is a miracle.  Two uncles who ...

Views: 575 Jan 26, 2016, 10:21 AM by Heather

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Cardiomyopathy forum


JOGGING


I'm interested to hear from anyone else my age (51) with Hypertrophic Cardiomyopathy who does some jogging/running. Do you take any special precautions, does the disease affect your running, what have your doctors advised regarding running etc?

Views: 476 Feb 28, 2016, 4:21 PM by Helga Mac

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