Stories of Cardiomyopathy

STORY
Cardiomyopathy stories
My disease is inherited from my Danish father ( because that DNA have ony been found in Denmark ) and one of my daughters has it too
Cardiomyopathy stories
My cardiomyopathy story starts in 1969, at the age of 5, when my 20-year-old brother Michael died, having made a short dash from work across a London road to meet our elder brother Paul for lunch.   I say my story starts here, but I have recen...
Cardiomyopathy stories
I was diagnosed with HCM in 2011 after an episode of heart flutter at end of 2010. Elected to have a SICD fitted which occured on May 23rd 2013. Never had a SCA but fitted with device because of risk factors including losing my father to a heart prob...
Cardiomyopathy stories
His were the first pair of newborn eyes that I gazed into during those early seconds after his arrival into this world and the first time I knew love like I had never known before. I knew that being a mother would forever be the most important thing ...
Cardiomyopathy stories
 I was officially diagnosed at the age of 14 in 1987, but I believe I had HCM long before that.  I have a strong family history of people with HCM. Does that I know of are my grandpa who died at 64, which is a miracle.  Two uncles who ...

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Cardiomyopathy forum

QUESTION
Question 277
I'm interested to hear from anyone else my age (51) with Hypertrophic Cardiomyopathy who does some jogging/running. Do you take any special precautions, does the disease affect your running, what have your doctors advised regarding running etc?

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Statistics of Cardiomyopathy

21 people with Cardiomyopathy have taken the SF36 survey. Mean of Cardiomyopathy is 1348 points (37 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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