Charcot-Marie-Tooth Disease
My Story
At a young age I would only walk on my tiptoes, causing my feet a lot of pain. As a got older my feet began to get worse, so in elementary school I went to CHOA to visit an orthopedic surgeon who diagnosed me with Cavus Foot. My fifth grade year I had both feet reconstructed, but we had yet to be informed on the possibility of me having CMT. Starting 6th grade year I began visiting many many doctors in Atlanta and Nashville, both neurologist and neurosurgeons because I had began to develop severe hand tremors. In November of my 7th grade year, after many different tests, we narrowed the options down to CIDP or CMT. After officially being diagnosed with CMT, and discovering there was nothing we could do to help, my life went on for a few years. Then my sophomore year of high school my orthopedic surgeon in nashville sent me to a colleague in Atlanta at Emory, who diagnosed me with severe hip dysplasia. Summer of 2019 I had a Periacetabular Osteotomy on my right hip, and I have been pain free since. My tremors are still very prevalent, and vary on severity depending on the day. I have knee problems and dysplasia in my left hip as well. Writing is the most difficult for me, as well as stairs, but in the end I know my condition could be worse than what it is. I’m lucky with where I am today.
Find people with Charcot-Marie-Tooth Disease through the map. Connect with them and share experiences. Join the Charcot-Marie-Tooth Disease community.