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Choroideremia stories
Hello to all affected CHM persons,
my name is Michael and I life in Geemany. I m the spokesman of the German CHM community and I work in different European and international organization to make CHM more public and find a therapy for CHM. Last y...
Views: 388 Jun 14, 2017, 11:59 AM by Michael Längsfeld
Two brothers, Tod and Justin Purvis, who suffer from a degenerative eye disease, and are going blind. Circumnavigate the United States, seeing the great sights that make America beautiful. Limited sight, with unlimited Vision.
Views: 303 May 29, 2017, 7:38 PM by TODEPURVIS
We found out he had CHM this year. has some issues at night otherwise he is doing pretty well. we have been to PA to see Dr. Aleman and doing a history study there and in Dallas Tx. my father was diagnosed with RP 40 some years ago...secere n...
Views: 298 May 29, 2017, 1:12 PM by Gina
Our son was diagnosed when he was 12 years old with CHOROIDEREMIA. He is now 20. Still drives and lives a normal life with it, he is in college and works a full time job. Choroideremia has still affected his eyes greatly mainly night vision. We were ...
Views: 289 Jun 29, 2017, 10:54 PM by Wendy
I am a 36yo mom of 2 kids. 1 boy 1 girl. I am a carrier of CHM and I have extreme light sensitivity. My family has a very strong inheritance factor for CHM. I have spent my whole life with close family members that are affected with this eye disease....
Views: 276 May 29, 2017, 9:09 PM by Tracy
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