Stories of Choroideremia

STORY
Choroideremia stories
We found out he had CHM this year.  has some issues at night  otherwise he is doing pretty well.  we have been to PA to see Dr. Aleman and doing a history study there and in Dallas Tx.  my father was diagnosed with RP 40 some years ago...secere n...
Choroideremia stories
Two brothers, Tod and Justin Purvis, who suffer from a degenerative eye disease, and are going blind. Circumnavigate the United States, seeing the great sights that make America beautiful. Limited sight, with unlimited Vision.
Choroideremia stories
Hello to all affected CHM persons, my name is Michael and I life in Geemany. I m the spokesman of the German CHM community and I work in different European and international organization to make CHM more public and find a therapy for CHM. Last y...
Choroideremia stories
I am a 36yo mom of 2 kids. 1 boy 1 girl. I am a carrier of CHM and I have extreme light sensitivity. My family has a very strong inheritance factor for CHM. I have spent my whole life with close family members that are affected with this eye disease....
Choroideremia stories
I was diagnosed with RP in 8th grade and in the last 7 years that was rediagnosed as choroideremia. I have a younger brother and cousin who have the disease too and my grandfather went blind because of it. I don't drive but have a wonderful life as a...

Tell your story and help others

Tell my story

View more

Choroideremia forum

QUESTION

Ask a question and get answers from other users.

Ask a question

View more

Statistics of Choroideremia

3 people with Choroideremia have taken the SF36 survey. Mean of Choroideremia is 2833 points (79 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

View more

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map

Choroideremia

Join the map