> Choroideremia > Stories

A life journey for sure

I was diagnosed with RP in 8th grade and in the last 7 years that was rediagnosed as choroideremia. I have a younger brother and cousin who have the disease too and my grandfather went blind because of it. I don't drive but have a wonderful life as a father, husband, and school teacher. I was part of the clinical trial in the U.S. and it has been amazing to follow the journey of eyes and get to know so many with the same issues and challenges. 

World map of Choroideremia


Find people with Choroideremia through the map. Connect with them and share experiences. Join the Choroideremia community.