- Cogan syndrome
- Interviews
Mwmclane's interview
How did all start?
Over night. As an acute onset of vertigo, nausea, vomiting and hearing loss
Do you already have a diagnosis? How long did it take you to get it?
5 months
For what medical specialties have you been treated? What has been the most useful specialty for your?
ENT, eye doctor, Rheumatologist
What has been the most useful thing for you so far?
Ability to work. High dose prednisone didn’t work. As a matter of fact, the ENT started at a very high dose and he could never wean me off below 100mg. Cytoxen proved to be the winner and I was able to come completely off steroids and burn my immune system out.
Cochleae implants also proved to be a game changer on a daily bases!!
What have been your biggest difficulties?
Struggling with deafness.
How has your social and family environment reacted? Have your social or family relationships changed?
Supportive to a degree
What things have you stopped doing?
Climbing ladders, and anything that has to do with walking at night
What do you think about the future?
It’s going to be alright
So far, which years have been the best years in your life? What have you done during them?
The last 7. I should have chosen my fights better
What would you like to do if you didn’t have your condition?
Nothing. I’m doing basically everything I want
If you had to describe your life in a sentence, what would it be?
Frustrating
Finally, what advice would you give to a person in a similar situation?
Don’t give up. Your illness does not define you. You define your Illness.
