the oldest person on record was 57 years old and female I am a 53 year old female at this time the death of a person with CAH is usually a heart conditions or adrenal crisis
I was told that if i carry on taking my tablets and gong for tests and check ups and being careful that any medical team in an emergency know I need the hydrocortisone on top of any other treatment I can expect a normal life expectancy.
I've never found anyone past ~60, no matter their general health.
I'm 52 now & it's been a very physically difficult life.
I'm not rushing it but I'm ready for it.
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my childhood was spent in and out of the hospital for the first 5 years due to adrenal crisis and medication adjustments 6-12years more stable years the disease didn't slow me down I had my first and only child at 18 years old with severe complicatio...
My son was born with CAH. He is 45 years old. After he turned 18 years old, the Great Team of Doctors said good by and asked that we find a Physician familiar with CAH.
We are still looking for one! My son has been treated by a doctor that doe...