Congenital Sucrase Isomaltase Deficiency
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Congenital Sucrase Isomaltase Deficiency stories
Diagnosed at age 6 in Melbourne.
No known family history of disease.
No sucraid available in Australia so diet only to treat condition. Normal lactase enzyme but sucrase and maltase levels extremely low or non existent.
Views: 533 Apr 12, 2016, 8:57 AM by Lauryn (Paula)
My son has CSID. Diagnosed at 5 years of age. It's been a long journey to get to this point.
As there is no access to sucraid in Australia, we are purely trying to manage by diet alone.
As a mother, I will always be a voice for my young...
Views: 512 Apr 11, 2016, 9:04 PM by Alyson
Views: 474 Apr 12, 2016, 4:29 AM by Natasha
my name is Millie and I was diagnosed with SI at age 18 months as I didn't fall under the top four genetic mutations of CSID and it was too expensive to continue testing, but I follow the exact same diet and can't have sucrose or much starch. I have ...
Views: 472 Apr 11, 2016, 9:29 PM by Millie
Congenital Sucrase Isomaltase Deficiency forum
Hello,
Just curious, do any of you struggle with UHT milk? I am fine with all other dairy but for some reason UHT is a no go for me.
For the life of me I can't figure out why, there are no added sugars. I'm wondering if this is a 'CSID thin...
Views: 209 Mar 12, 2019, 3:57 PM by Simone
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