World map of Cystic Fibrosis


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Cystic Fibrosis stories


MY CYSTIC FIBROSIS STORY


I was diagnosed with Cystic Fibrosis a few weeks after my birth, my mum was devastated she had no idea what this terrible illness was. They told her that I probably wouldn't reach adult hood and would not be able to do the same things as my peers.&nb...

Views: 950 by Jessica Todd

MAX


My son was born in 2011, happy and seemingly healthy. He had had his routine screeners when he was two days old in the hospital and nothing was picked up as being abnormal. It wasn't until my husband and I decided to donate our three embryos being st...

Views: 851 Feb 20, 2016, 4:45 PM by Helen

LEESA ASH'S STORY


Misdiagnosed for many years. Diagnosed at age 50. Am now in the 54-60 age range.

Views: 594 by Leesa Ash

THE QUIRKY CYSTER


Howdy! My name is Lizzie and I was a cranky baby for the first year of my life! My mom diagnosed me when I was one, based on a commercial with Mary Tyler Moore which mentioned salty tasting skin being a symptom. She noticed that I had salty skin whe...

Views: 516 by Lizzie

MY STORY


I was 5 months old when I got diagnosed with Cystic fibrosis later when I was 8 I was diagnosed with cf related diabetes and when I was around 14 I was diagnosed with CF liver disease. When I was 12 I was diagnosed with 5 blood disorders

Views: 464 by Azrea

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