World map of 22q11 DiGeorge Syndrome


Find people with 22q11 DiGeorge Syndrome through the map. Connect with them and share experiences. Join the 22q11 DiGeorge Syndrome community.

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22q11 DiGeorge Syndrome stories


VELOCARDIOFACIAL SYNDROME/VCFS


I was diagnosed at 1 year of age. 

Views: 1588 Feb 23, 2016, 4:05 PM by Ethan Powers

I AM 22Q ALONG WITH 2 OF 3 KIDS I HAVE


I have 22q. I wasn't diagnoses till after my youngest was born, then found myself, middle son and youngest have digeorge syndrome.  More story to come 

Views: 1016 Jan 15, 2016, 1:21 PM by Mandy McCabe

NEWBORN DIAGNOSIS


While in the NICU I was diagnosed with DiGeorge Syndrome. I was five weeks old at the time of diagnosis. We are moving forward with all of my specialist appointments to determine the range of my syndrome. 

Views: 709 Apr 15, 2016, 2:01 PM by Jordan

BRITTANY'S STORY


My daughter was diagnosed at 5 days old with digeorge. She is now 8 months old. We are still learning about her spectrum.

Views: 706 Jan 15, 2016, 12:47 PM by Brittany

HIS LIFE


He has 22q deletion. Cleft Low calcium  Kidney stones Two strokes  Hydrocephalus  Feeding issues  Low muscle tone  Developmental delay  

Views: 682 Apr 15, 2016, 2:31 PM by Isaac

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