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My Story

I started having problems with reading/writing and memory about 10 months before I had a TIA, which lead me down a road to diagnosis of Ehlers Danlos Syndrome and also Lupus SLE.  The diagnosis explained a lifetime of strange symptoms and issues I've experienced and never had an understanding on why I was so different/more sick/more easily injured than anyone else around me.

World map of Ehlers Danlos


Find people with Ehlers Danlos through the map. Connect with them and share experiences. Join the Ehlers Danlos community.