Help us to help more people
  2. Ehlers Danlos
  3. Advice
getting at least 7 hours sleep every night.
by colleen Archbold
Stay active. Although the body says to rest, thus can increase pain
by Cindi White
My daughter (she is 12 ) and i have EDS type 3 . Even though we are in a lot of pain. We can always find something to laugh about.
by Ina Hansen
Splints/braces/casts
by Jari Nordman
Beta blockers for Pots made a huge difference to me
by morag
Having an excellent consultant saved my life
by Julia
Magnesium baths and tablets
by Laura
A good pain management program. (medicine, water therapy, physical therapy, relaxation techniques)
by Maarit Bäckman
2 years of gabapentin
by Andrea Dodge
Medicine
by Lut
Nortriptyline for pain
by susan cook
Physical therapy
by Katie
My son. Wanting to give him the right tools to fight to be at his side so that he doesn't give up..
by Scarlett Myers
A doctor who actually cared and helped
by Georgia Weaver
My amazing physiotherapist that is with me through every injury - and helps with prevention
by Annika Vander Kooy
Changing diet non diary and less wheat
by Emma
www.swiss-eds.ch
by Liduina Freire - Swiss EDS Patient group
Tai Chi and Yoga
by Julie
Less stress
by Raelynn
Education
by Stephanie
rest when you need to
by Dianne sharp
Baclofen (muscle relaxant) for muscle spasms/trigger points
by Lindee Taha
Faith in God and understanding from my church family
by AJ
Drinking water and nothing else but water. Helps me sleep. No soda, no coffee, no alcohol. Just water. Cold, hot and with herbs, like herbal tea.
by Xandra Koster
Sunnaas hospital for rehabilitation
by Nina Sivertsen
Pace yourself
by Mai
Letting yourself rest (and not feeling bad about it.)
by Ninja Paunonen
For me moving makes me feel better. The more I move the less I hurt.
by Bridget
Crutches & knee braces
by Lynda Ward
60mg of Cymbalta every evening
by Missi Stone
acupuncture has helped me to function better for short periods of time with fewer meds
by Margo
Keep joints warm
by Kjartan Horne
Pain management/Physical Therapy
by Michelle
A good support system
by Sarah
My dogs
by Debbie
Diagnosis
by Sara
Twice daily I take a cocktail of pain meds, this allows me to be functional while not constantly thinking about my pain.
by Sherry Hickman
Med rotations
by Kelsey Roberts
Getting my damn diagnosis and learning how to advocate for myself.
by Courtney
My kitty
by Angie
My son always makes my days better
by Andrea
Flexeril for muscle spasms
by KK
Weekly Osteopathy
by Courtney
My supportive family
by Hannah
Having a diagnosis
by Gwen Nelson
Zonisimide changed my life
by Laura Dark-Bell
laying down couple hours a day
by christy hacker
Family & friends support system, Canine service animal
by Carrie Ann Juraska
Lots of water!!! Stay hydrated!
by Annahliese
Ketotifen 2mg 2x/day helped all forms of urticaria tremendously
by Beth