physical therapy 2 a week
Diet - Removing foods thats where toxic to my body
Good medical team
hot water bottle
constant physical therapy
Pain Medication that allows me to function as normal as a person with EDS III can in every day life..
Most important, beeing believed and supported by my gp/doctor.
Orencia Infusions
Wheat bags
Doing online college ( homeschool as well). Gave me freedom to rest when needed.
Gabapentin and tramadol has helped my pain a bit, lowered my appetite and not had any adverse side effects for me.
Warm water therapy. 87-92 helps the most with every thing, I have to where compression sleeves on knees and ankles but it helps so much and I am in a motorized wheel chair when out of water
Knowledge as to what was wrong with me and my daughter
Water
low GI diet
Medication as much as not fully helpful
Daily 1-2 liters of NSS IV fluids since 2008
My fantastic friends and family
Support from my husband
Being able to communicate with other eds members
Duloxatine and Butrans have helped about 80%.
Doing physical therapy with a therapist who is familiar with EDS.
Yoga
positive thinking
Friends
Washing my clothes with ionization and equal mixture of oxyclean, borax powder and baking soda. Switching out household cleaners for Nature's Concentrate and other natural cleaners.
Massage - if I could get a massage every other day it would change my life.
Meditation & relaxation techniques
Rx: Gabapentin, Venlafaxine, Amitriptyline, Voltaren gel, Percocet
Pain medicine gives ability to function
my friends unwaivering support and love has done the most in making me feel better.
Making myself get out of bed & shower.
Making myself get out of bed & shower.
my moms has been there to support me when things don't go well. She is always there when i just need a simple hug and reassurance that i am zebra strong
Working with an amazing physical therapist who takes time to learn what my body is doing
Full diagnosis , so I could better understand my limmits
decompression surgery
i have know I had celiac disease for 13 yrs now. i was very sick as a child growing but never knew why.
Increased Salt intake with 1000mg tablets
Getting a diagnosis and having a name to put to what's wrong and finding a doctor willing to learn about my condition changed everything for me.
Drinking lots of water and eating healthier
Ketamine Infusions
Getting a formal diagnosis. I self-diagnosed then gp and specialists confirmed
seven operations on my hips changed my life!
Amitriptyline, helps the pain and has improved my quality of sleep
My friends with EDS who give me amazing support and advice
Pain management