Help us to help more people
  2. Ehlers Danlos
  3. Advice
Acceptance that medical resources are not the answer b/c they just don't know how to help.
by Lori
Having a supportive network of family and friends.
by Louise
My intake is miinimal, and TPN is my primary nutrition. Homemade smoothies with fresh or frozen fruit, vanilla yogurt, a little sweetened condensed milk, fresh pressed natural apple juice to thin to desired consistency.
by Tanya
Ketogenic diet, reduced migraines and took some pain away
by Cin
Midodrine
by Michelle
midodrine (can't live without that stuff!)
by Gabrielle
Midodrine. puts a floor under my BP, which also reduces overreaction to very high bp.
by Ginny Ickle
Drink lots of water
by Diana
Having other edsers to converse with
by Max
Medication
by Jesse
Gluten Free and whole foods only diet (no processed food) helps with MCAD and digestive issues
by Jane
Appropriate bracing of joints
by Elizabeth
Nutritional supplementation A,D,E, &K2 and Magnesium
by Darla Sanders
Being downsized and forced not to work over 40+ hours every week has resulted in reduced pain.
by Susan Eskdale
Pain medication
by Ehlers Danlos Syndrome
My GSD's Bella and Lexus
by Kari
Support Groups are amazing & a must!
by Tamira Bridge
Eating very spicy things containing Capsaicin during a flare. (Trigeminal Neuralgia)
by Fred
Meds help give some of my life back.
by Sam
High dose Vitamin C plus cofactors (calcium, magnesium, zinc) & Cusack Protocol
by Jan Groh
Exercise helps as long as I don't overdo it.
by Angela
My AFO has allowed me to walk short distances again
by Mary L.
This is for my daughter.. Knees up to her chest seemed to help a bit.
by Theresa/Brooke
Lots of rest and lying down
by Chris
Pain medication
by Alicia
My friends that understand my diagnosises
by Jessie Marie
Gabapentin & Naproxen
by Carole
Sourire, se dire qu'on est bien change l'état d esprit de notre corps
by Cindy
Epsom bath salts
by Sarah
Sleep
by Kitty
Trying to stay active, but knowing my limits
by Tamara
Learning to pace myself
by sarah glynn
Stay the course! Focus on as if following the 'North star' keep moving toward a better quality of life.
by Sandy
Swimming
by Christie
resting when my body needs it. Which is more than I like.
by Sylvia
rest
by Vicky
My puppy, boyfriend and family, couldn't have got to where I am without them
by Jessica
Good Team of Doctors
by Emma
Dry needling
by Ellen
My faith
by Nancy
To be diagnosed
by Alicia Flors
Heat
by Jan
Support and braces
by Hazel
Regular asthma nurse appointment
by Stefani
My amazing supportive husband
by Carly
Physical therapy
by byoung353p
my family
by Tanya
Massages. Has to be at least twice a week, because it's expensive I can't maintain it.
by Sandi
Pain meds
by Janet
nerve damage pain meds
by Cheryl