EDS & happy life
Since I was a child I go through lot of pain and injury.
Pain was because " I was growing up " the injury were because"I was clumsy" . I grow up thinking those pain were normal and that everybody hurt like that. I've done lot of MRI, scanner or radiography . Despite of all of this I had a very happy childhood with a lot of Travel, Friends and love.
When I was nearly 16 , things gone worst, pain became something I used to live with everyday. My knees and anckles didn't support me anymore. I was falling all the Time. I had to stop sport, I was a swimmer but pain and shoulder and knees dislocation Made me quit. Then I experiment paralysis, cramps, respiratory blockage and a lot of other symptômes.
In my early 20 I met à doctor that trust me and try to understand my pain. One day on come to his office After seeing a YouTube vidéo of a teenage girl speacking of her Ehlers Danlos syndrome. After some research i found that a lot of symptoms were matching to my conditions, even things that I was thinking they are pretty normal.
He said that indeed it could be an EDS and he helps me.to find someone to give me a diagnostic. I was diagnose few month After , now I have treatment for my stomac, my bladder, uncontrolled movments, tiredness, for my Heart and some pain killers.
All of these help me to manage my all day life, pain is always here , a kind of Friend.
But I have a happy life , i'm engaged with my boyfriend , I have a very supportive family, i try to do things i want to do but i adapt it to me and how i feel.
Sorry for my Bad english :)
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