> Ehlers Danlos > Stories

TMJ

I've had several surgeries to relieve pain.  The last one being orthagnathic in 2010.  After 5 years however, I am back to daily chronic pain.  Saw my doc who advised my only option - aside from just living with it like I have been -  is total joint replacement -- both sides.  I'm having great difficulty locating a physician that performs such a procedure AND has experience and good outcomes.  Any suggestions .... only one I've found is Dr. Mitakides who hasn't responded to any of my emails that were sent.  I know there aren't any in my state - Montana - but somewhere closer than the other side of the country would be nice .... if I could locate any at all.  :)

World map of Ehlers Danlos


Find people with Ehlers Danlos through the map. Connect with them and share experiences. Join the Ehlers Danlos community.