On Wednesday 8th April 2009 at 1:23pm my amazing miracle James Paul Myles arrived into the world, as soon as he was placed in my arms he was my life, no feeling could ever compare to that day.
When James was 2 years old he had several accidents that...
George is my 5 year old son who was diagnosed with Olliers 3 years ago he has it in his fingers, arm, shoulder, ribs, hip, leg, knee, ankle, foot and toes on his left side and also his it in his collarbone and his hip on his right side. He's always s...
My son fell and broke his knuckle over his little finger when he was 5 years old.
During xray, when they took a look at his pictures, they saw that he had broken bones in his hand multiple times before.
He has never expressed any form of pain...
I'm married; I have 3 kids (°2012, °2013, °2016).
The eldest, my daughter has maffucci.
Ollier was diagnosed at the age of 2; Maffucci at 4.
We're under supervision @Ghent and Brussels
11 people with Ollier disease have taken the SF36 survey. Mean of Ollier disease is 1852 points (51 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey
