RobynS's interview


How did all start?

Started at the same time braces were put on

Do you already have a diagnosis? How long did it take you to get it?

I do have a diagnosis. It took 18 months and 12 doctors.

For what medical specialties have you been treated? What has been the most useful specialty for your?

Dermatology

What has been the most useful thing for you so far?

The dermatologist

What have been your biggest difficulties?

Finding a successful treatment and keep flare ups to a minimum

How has your social and family environment reacted? Have your social or family relationships changed?

Family is upset there seems to be no cure

What things have you stopped doing?

Sometimes avoid scoial events

What do you think about the future?

I am hoping for a future without EM

So far, which years have been the best years in your life? What have you done during them?

I am only 18, the best years are ahead

What would you like to do if you didn’t have your condition?

socialize more

If you had to describe your life in a sentence, what would it be?

Just beginning...

Finally, what advice would you give to a person in a similar situation?

Never give up


Apr 21, 2021

By: RobynS

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