Burning Blood
On December 27 2018, my feet turned bright red and I felt a burning pain. It lasted for a few hours and I googled what it could be and erythromelalgia came up. I didn’t really think it was that and I’m not one to rely on google for a diagnosis, so I didn’t think much of it. In January it happened again, and from there it kept getting worse. I was diagnosed by a doctor in August after multiple visits, as the first few doctors had no idea what it was. At the time I’m writing this, it’s December 5 2019, almost a year since the first occurrence. I get flareups at least twice a day and they are much more painful than they originally were. I used to take benadryl and it helped a little, but now it has no effect on me. Activities and life in general is harder, and I’m scared of how bad it can get considering the amount it has progressed in a year and other stories i have heard. I haven’t tried any other medication or treatments for my symptoms, but i would like to start looking into it. Usually when a flare up happens at sports practices or at home i’ll lay on the ground and put my feet up on the wall and raise my hands in the air, but obviously I can’t do that in class or in public. Hoping for someone to find a cure. If not, I’ll find one myself. I’ll try, at least.
Find people with Erythromelalgia through the map. Connect with them and share experiences. Join the Erythromelalgia community.