Stories of Erythromelalgia

STORY
Erythromelalgia stories
My symptoms first started in October of 2010.  I began to investigate my symptoms on the internet.  After searching I came upon Erythromelalgia and ALL my symptoms matched.  I then began my search for a doctor who could and would help ...
Erythromelalgia stories
A lot of medication since 5 years Nothing help  
Erythromelalgia stories
I can't remember a time when I didn't have hot feet. I haven't been diagnosed, but my sister has. I also have neuropathy. My feet look black most of the time and I just had an ultrasound and doplar done only to find my circulation is excellent. ...
Erythromelalgia stories
I started getting stange burning in my feet and calves about a year ago.  Went to many doctors and had all the test.  None could diagnose me.  Said probably samll fiber neuropathy even thought the skin biopsy was negagive.  Stumbl...
Erythromelalgia stories
I was diagnosed in 2015 bij the Academisch Ziekenhuis Maastricht (academical hospital in Maastricht, netherlands). After a 1,5 year journey of searching for answers. I love to be in Facebook support groups, they really get what I am going through.

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Erythromelalgia forum

QUESTION
Question 334
Are there any eythromelgia 'experts' in the uk?

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Statistics of Erythromelalgia

13 people with Erythromelalgia have taken the SF36 survey. Mean of Erythromelalgia is 1365 points (38 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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