A Erythromelalgia story

My son is 7 years old. From early days he would cry in pain and grab his feet. I would notice his feet were swollen and red.... Took us a long time to get his official diagnosis. We were told that he was the only child in Yorkshire to have this condition. Would be good if we could find more people!!!

Kendakk was born in 2008. I'm Ruth his mum... Although he suffers a lot he is such a happy little boy!!!