Red Pain

I was 18 when I first started noticing the burning pain associated with working out and being in hot humid environments and so I went to my doctor and asked him about it and he didn't have a clue so he sent me to an endocrinologist. To save you a bunch of time I went back and forth from every type of specialist out there until I landed on a rheumatologist who had actually heard of this disease and was treating another patient with Erythromelalgia. She tried me on a lot of different medications and Tramadol and Lyrica and it up helping the most. Now I have lost so many jobs due to having this condition. Every single one of my jobs I was fired due to having so many absences and that's just it I wasn't sick or on vacation it was just having to deal with not being able to sleep or constantly being in pain every minute of every hour of every day. I have finally decided to try and get long term disability because I have tried working in a job where there is constant air conditioning and I'm sitting down all day but that doesn't help. I just take life one day at a time and hope that a cure will come out soon.