Living with Factor V Deficiency

Factor V Deficiency, also known as Owren's disease or parahemophilia, is a rare inherited blood clotting disorder. People with Factor V Deficiency have lower levels of a protein called Factor V, which plays a crucial role in the clotting process. Living with this condition requires careful management and awareness to prevent excessive bleeding and complications.

Medical Management

If you have been diagnosed with Factor V Deficiency, it is essential to work closely with your healthcare team, including hematologists and specialized nurses. They will guide you through the necessary medical management strategies, which may include:

• Regular check-ups: Schedule regular appointments with your healthcare provider to monitor your condition and adjust treatment plans if needed.


• Factor V replacement therapy: In some cases, your doctor may recommend Factor V replacement therapy to increase the levels of this clotting protein in your blood.


• Blood transfusions: In emergency situations or during surgeries, you may require blood transfusions to ensure adequate clotting.


• Medication: Your doctor may prescribe medications, such as antifibrinolytics or desmopressin, to help control bleeding episodes.

Lifestyle Modifications

While living with Factor V Deficiency, certain lifestyle modifications can significantly reduce the risk of bleeding and improve your overall well-being:

• Avoid high-risk activities: Engage in low-impact exercises and avoid contact sports or activities that may increase the risk of injury.


• Inform healthcare providers: Always inform your healthcare providers, including dentists and surgeons, about your condition before any procedures or surgeries.


• Preventive measures: Take precautions to prevent injuries, such as using protective gear when necessary and practicing good safety habits.


• Healthy lifestyle: Maintain a balanced diet, exercise regularly, and avoid smoking or excessive alcohol consumption to promote overall health.

Education and Support

Living with a rare condition like Factor V Deficiency can be challenging, but seeking education and support can make a significant difference:

• Learn about your condition: Educate yourself about Factor V Deficiency, its symptoms, treatment options, and potential complications. Knowledge empowers you to make informed decisions and manage your condition effectively.


• Connect with support groups: Joining support groups or online communities can provide a platform to connect with others facing similar challenges. Sharing experiences, tips, and emotional support can be invaluable.


• Psychological well-being: Don't hesitate to seek professional help if you experience anxiety, depression, or other mental health concerns related to your condition. Mental well-being is an essential aspect of living with any chronic illness.

Remember, living with Factor V Deficiency requires ongoing vigilance and self-care. By working closely with your healthcare team, making necessary lifestyle modifications, and seeking support, you can lead a fulfilling life while managing this condition.