born in the eighties when doctors didnt know much but im a survivor
_I'M A ONGOING LIVING SURVIVOR OF A RARE AND ASTONISHING TYPE OF GASTROSCHISIS, I WAS BORN IN 1987 WITH NOT ONLY MY INTESTINES OUT OF MY BODY BUT MY LARGE INTESTINE SMALL INTESTINE STOMACH,KIDNEYS,PANCREAS,WOMB AND FALLOPIAN TUBES WAS OUT OF MY BODY AT BIRTH,MY MUM HAD A NORMAL LABOUR CONSIDERING,BUT I HAD FOUR OPERATIONS AFTER BIRTH TO PUT EVERYTHING BACK IN ACCORDINGLY HAVING SHORTENED MY SMALL BOWEL AND REMOVED MY APPENDIX ....I HAD TO HAVE MEDICATION ALL MY GROWING LIFE AND ITS NOT STOPPING ANY TIME SOON ..GROWING UP WITH GASTROSCHISIS WASNT AND ISN'T EASY AS I WAS ALWAYS UP THE HOSPITAL LIKE A SECOND HOME AND KNOWING MY BODY WAS DIFFERENT TO ANYONE ELSE'S (I SAY THIS BECAUSE I HAVE A BIG SCAR DOWN THE CENTRE OF MY STOMACH WITH A STAR SHAPED SCAR AS A BELLY BUTTON) SO GROWING UP HASN'T BEEN EASY BUT I'VE MANAGED KNOWING THAT I'M DIFFERENT BUT DON'T APPEAR DIFFERENT..._
_MY MUM WAS GIVEN STRICT INSTRUCTIONS WHEN I WAS YOUNGER REGARDING MY DIET AND I WISH SHE HAD STUCK TO THEM AS I WOULDN'T STILL BE SUFFERING THE WAY I DO MEANING MY DIET IS VERY LIMITED IE: I'M LACTOSE AND FRUCTOSE INTOLERANT,GLUTEN WHEAT AND YEAST I CAN'T HAVE AND I HAVE TO LIMIT MY CARBOHYDRATE INTAKE LIMITS ON PASTA,RICE ETC SO I FIND IT HARD TO MAKE VARIOUS MEALS FOR MYSELF ...._
_I HAD TO HAVE A MAJOR OP IN 2013 TO FIX MY BOWELS THAT HAD MALROTATED INSIDE AND WAS STUCK TOGETHER WITH THE SCAR TISSUES OF 25 YRS PLUS 3 ADHESIONS AND MASSES OF SCAR TISSUE WHICH HAD ATTACHED TO OTHER ORGANS IN MY BODY CAUSING ME A LOT OF PAIN,SINCE HAVING THE OPERATION I'M STILL UNDERGOING TESTS AND NOW KNOWING I HAVE TO HAVE ANOTHER OPERATION BECAUSE THE LAST ONE HAS COME UNDONE AND I NEED TO BE REOPENED AND HAVING TO GO THROUGH THE RECOVERY PROCESS ONCE AGAIN IS A STRAIN ON MYSELF AND MY DAUGHTER...BUT SOMEHOW STILL MANAGING SO WHEN IT COMES TO PAIN KILLERS FOR ME AT THE MOMENT THE DOCTORS HAVE STATED THERE NOT MUCH THEY CAN GIVE ME AS ANYTHING CAN CAUSE AN EFFECT TO ME IN SOME WAY... I'M A COMPLEXED CASE ... XXX PLEASE FEEL FREE TO CONTACT ME THANKS FOR READING MY STORY XX _
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