World map of Haemophilia


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Haemophilia stories


SEBASTIAN VIVIAN'S STORY


I am a top level basketballer who has played internationally and my Haemophilia rarely effects my life despite being a moderate and the high level of activity I do daily.

Views: 567 Nov 27, 2015, 8:11 PM by Sebastian Vivian

HOW HAEMOPHILIA CHANGED MY LIFE IN 100 WORDS OR LESS (KINDA)


Haemophilia has been a part of my life from the day I was born. When it came to my diagnosis it was a pretty simple process considering we already knew my mum and her dad had Haemophilia so I was confirmed at only a few weeks old, that is something I...

Views: 550 Dec 14, 2015, 6:08 PM by Ben

LOOK BEFORE YOU LEAP


Hi,   From my Child hood i had suffered a lot , most of my times i was  in hospitals and less at  home or school. Moreover my attendance drop to less than 50% during my school days and i missed out many exams during th...

Views: 472 Dec 26, 2015, 12:44 AM by Hariharan

AGAINST THE ODDS.


At 7 months I was faced with a bent swollen left knee.My parents were baffled until they took me to a private medical practicioner and was immediately sent to the public hospital. It took two months for my dignosis when in the interim I was treated w...

Views: 453 Dec 16, 2015, 3:04 PM by kevin solomon

FAMILY STORY


We are a family of hemophilia B. I am the mother, a carrier. We have two children who are both severe patients, Jason (born 2004) and Ruben (born 2006). They are attending the European School. My husband works for the European Commission in Luxembour...

Views: 426 Jan 19, 2016, 12:14 PM by Marelle

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Haemophilia forum


WHAT IS EVERYONE'S FAVORITE PHYSICAL ACTIVITY?


Mine is surfing. With medicine I am blessed to do many sports.

Views: 319 Nov 28, 2015, 11:23 AM by Shawn

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