Conocer lo mejor posible sobre la Hemofilia (Tratamiento, Rehabilitación, cuidados, etc.)
AUTO CUIDADO
Regular Physiotheray and exercise changed my life, I'm free of spontaneous bleeds and away from factor since 2009
no restriction from my parents
Building strong muscles and leading a physical lifestyle
swimming
The support of family and friends. Especially those who have haemophilia in their lives
getting the medication.
getting the medication.
Não se conforme com o pouco. Busque sempre o melhor pra você.
vWD type 3
Strong family and friends background
factor 8 made life easier to me.
Treatment time - home therapy
I am taking upon myself to make the world aware of bleeding disorders. I will leave my country for a 2 / 3 year tour across the world.
“The word impossible is not in my dictionary.” Napoleon Bonaparte
We were happy to have caesarian sections. Both sons were born by CS.
Alprolix
Learning to inject myself so that I am able to inject my treatment when I need it.
Infusing factor monthly has been a life saver
My parents protected me from injuries when I was a child
The only good thing that come with haemophilia is the education you give to yourself by trying to escape from pain.
Learning to cope with permanently taking pain meds
Profilaxia
Joining Swedish Haemophilia Society
LA PROFILAXIS ME HIZO TENER MEJOR CALIDAD DE VIDA
Learning from surroundings
Acercarte a una organización de hemofilia para recibir las informaciones necesarias y convivencia con demás personas que la padecen.
CONOCER LA HEMOFILIA
I'm the regional youth representative for Hemophilia youths for south India in Youth group of Hemophilia Federation (India)
i sing, dance, play , run , cycling etc as normal person , it leads me without spontaneous bleed
Medical and emotional support from my Mum
sportron multivitamin and joint repair
Purple Soup adventure therapy camps with HFV
my mum is very supportive
my mum is very supportive
Faça acompanhamento médico multidisciplinar regularmente.
Doing sports with caution without been disconnected from what I like ( table tennis , gym )
physical therapy
I am going to earn funds to donate solely for the purpose of research and development of better medications.
My parents and my sister is always on my side
We were glad to work with port-a-caths. Both sons had them for eight years.
Great support
The many friends I have made over the years have been instrumental in my learning about my bleeding disorder and others. The support from this community is vital!
Active life as much as possible
Both my parents and my family have been suported me from the beggining.
Allowing Novo 7 to be given to me when everything else fails
Fisioterapia
Appropriate prophylaxis
EL AMOR INCONDICIONAL DE MI ESPOSA E HIJOS