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Which advice would you give to someone who has just been diagnosed with Henoch-Schönlein purpura?

See some advice from people with experience in Henoch-Schönlein purpura to people who have just been diagnosed with Henoch-Schönlein purpura

Henoch-Schönlein purpura advice
3 answers
There are plenty of people out there that have had it/experiencing it. Do bear in mind that if u go on support group pages you will often hear the worst cases (who needs help when it's gone or things are good???), but things can improve, and if you've come through the first bout, relaspses are common but not as bad as the first, u survived that, u can survive anything.

Posted Mar 12, 2017 by Lynsey 1280
It will go away on its own and I can help you day by day

Posted Oct 5, 2019 by Amy 13500
At the start monitor the kidneys. Kidney involvement can do irreversible damage.

Posted Nov 11, 2019 by Travis-Samantha 1500

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Stories of Henoch-Schönlein purpura

HENOCH-SCHÖNLEIN PURPURA STORIES
Henoch-Schönlein purpura stories
12/23/15- 3 day long sore throat, negative strep test 12/31/15- severe stomach pain occurring in waves and causing doubling over cramping  1/2/16- ankle swelling, pain, minor purpuric rash on ankle  1/4/16- severe knee swelling, severe pain, ras...
Henoch-Schönlein purpura stories
i had a case of adult HSP triggered by strep throat. I suffered mid vasculitis and quite bad joint pain. The nephrologist treated me with Prednisone and symptoms were mostly gone after 10 days, though the treatment continues for 5 months. I didnt ha...
Henoch-Schönlein purpura stories
My son is 3 years old, and has shown the first signs of HSP in late May 2016. He's had 3 occurences in 4 weeks, so far.
Henoch-Schönlein purpura stories
Henoch-Schönlein purpura stories
my daughter had her first out break in 2008. Lasted for about a week. Then went away and just came back april!15, 2016.... This time it is horrible. Her rash clears up when she is pretty much bed rest. Her choice... Then as soon as she gets on her fe...

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