HHT or Osler Weber

With 1 in 5000 people, many more don't even know!

The sad thing I have learned about HHT is the lack of knowledge by family physicians.

I was very lucky I have a doctor who is young and learned a small amount about in medical school. I was a Christmas gift to him. I educated him more, but he had an open mind to listen!!

My father and my grandmother both have/ had it. I have seen my father suffer dearly over the years since I was a small boy. The lack of knowledge in the 70's and 80's made in suffer.

Today he is living because of the treatment at the HHT Clinic in Toronto at St Michael's Hospital. The best one in Canada.

My advice to anyone and everyone; you get nose bleeds, headaches, low iron, shortness of breath....plus so much more..... Tell your doctor about HHT.

HHT is only passed on thou you mother or father... just because they seemed normal, does not mean you may not have HHT. IT AFFECTS EACH FAMILY MEMBER DIFFERENTLY. ( My father bleeds from the nose nearly daily. I don't bleed from my nose ) I am in the 5% who don't get nose bleeds....I am very rare.

Any question, send me email. I will try to answer to the best of my knowledge.

Kevin