I began having nose bleeds at age 5, I wasn't scared because I'd seen so many family members have them. Because they became so bad I was taken to ENTs and Hematologist, where I was actually diagnosed after they examined my father. In 1993 my 2nd chil...
With 1 in 5000 people, many more don't even know!
The sad thing I have learned about HHT is the lack of knowledge by family physicians.
I was very lucky I have a doctor who is young and learned a small amount about in medical school. I ...
I started having nosebleeds in my 20's, but it was much later when my cousin informed me HHT runs in our family. It hasn't slowed me down much, just nuisance nosebleeds, but as I approach 70 they are getting worse. What I've been doing seems less...
8 people with Hereditary Hemorrhagic Telangiectasia have taken the SF36 survey. Mean of Hereditary Hemorrhagic Telangiectasia is 1772 points (49 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey