There are 111 people in the Hereditary Hemorrhagic Telangiectasia map

History of Hereditary Hemorrhagic Telangiectasia

What is the history of Hereditary Hemorrhagic Telangiectasia?

Latest progress of Hereditary Hemorrhagic Telangiectasia

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Hereditary Hemorrhagic Telangiectasia symptoms

Which are the worst symptoms of Hereditary Hemorrhagic Telangiectasia?

Is Hereditary Hemorrhagic Telangiectasia hereditary?

Is Hereditary Hemorrhagic Telangiectasia hereditary?


Stories of Hereditary Hemorrhagic Telangiectasia

STORY
Hereditary Hemorrhagic Telangiectasia stories
With 1 in 5000 people, many more don't even know!  The sad thing I have learned about HHT is the lack of knowledge by family physicians.  I was very lucky I have a doctor who is young and learned a small amount about in medical school. I ...
Hereditary Hemorrhagic Telangiectasia stories
I began having nose bleeds at age 5, I wasn't scared because I'd seen so many family members have them. Because they became so bad I was taken to ENTs and Hematologist, where I was actually diagnosed after they examined my father. In 1993 my 2nd chil...
Hereditary Hemorrhagic Telangiectasia stories
A young child with HHT. And on the waiting list myself. 
Hereditary Hemorrhagic Telangiectasia stories
I started having nosebleeds in my 20's, but it was much later when my cousin informed me HHT runs in our family.  It hasn't slowed me down much, just nuisance nosebleeds, but as I approach 70 they are getting worse.  What I've been doing seems less...

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Statistics of Hereditary Hemorrhagic Telangiectasia

6 people with Hereditary Hemorrhagic Telangiectasia have taken the SF36 survey. Mean of Hereditary Hemorrhagic Telangiectasia is 1694 points (47 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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Hereditary Hemorrhagic Telangiectasia