HME and Me

I got HME from my momther and was diagnosed at the early age of three. I'm shot in height and have short arms and legs. I was treated at A.I. DuPont for my entire childhood. The doctors wanted to operate nemourous times, but being scared I refused. When I was in my middle 30's, HME started to affect me physically, requiring my first major surgery. Since then, I have had 11 surgeries, 4 of them major. 2 of my tumors turned cancerous. Luckily, i have not had a regrowth, but they are currently watching one now. I get MRI'S every 4 months to monitor tumors on my spine and pelvis. I've been followed by Dr. Richard Lackman at Cooper Hospital in Camden, NJ. He began treating me at the University of Pennsylvania back in 2007. With out him, I would be at a loss. He is a simply an awesome physican. Luckily, my tow kids did not get HME. That is my biggest blessing.