There are 200 people in the Hereditary multiple exostoses map

Living with Hereditary multiple exostoses

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Hereditary multiple exostoses symptoms

Which are the worst symptoms of Hereditary multiple exostoses?

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Is Hereditary multiple exostoses contagious?

Is Hereditary multiple exostoses contagious?

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Stories of Hereditary multiple exostoses

STORY
Hereditary multiple exostoses stories
MHE from age 3
Hereditary multiple exostoses stories
Oh dear.... now I have to write a story.
Hereditary multiple exostoses stories
There are many different ways to live your life. There are many different walls put in front of you throughout your life. Some people lose a family member, others a love but few have to battle against themselves and the misfortune of an illness. Ha...
Hereditary multiple exostoses stories
I have "spontaneous" MHE. No one else in my family has been identified as having MHE. We first discovered it when I was 4 years old, and I have had 17 surgeries.  I have actually done really well most of the time and I have a very active life! M...
Hereditary multiple exostoses stories
I got HME from my momther and was diagnosed at the early age of three. I'm shot in height and have short arms and legs. I was treated at A.I. DuPont for my entire childhood. The doctors wanted to operate nemourous times, but being scared I refused. W...

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Statistics of Hereditary multiple exostoses

4 people with Hereditary multiple exostoses have taken the SF36 survey. Mean of Hereditary multiple exostoses is 1981 points (55 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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Hereditary multiple exostoses