A Ichthyosis interview .

Wendy's interview


How did all start?

Birth

Do you already have a diagnosis? How long did it take you to get it?

Yes

For what medical specialties have you been treated? What has been the most useful specialty for your?

Dermatologist

What has been the most useful thing for you so far?

The most useful thing for me is using oil Any type product with an oil

What have been your biggest difficulties?

The look and itchiness

How has your social and family environment reacted? Have your social or family relationships changed?

People wonder and ask questions

What things have you stopped doing?

More like don't do. I have covered up from childhood on so it isn't visible to others

What do you think about the future?

My skin is tight, might affect me later for mobility and usage of my hands

What would you like to do if you didn’t have your condition?

Wear a bikini, shorts, going public in a dress

If you had to describe your life in a sentence, what would it be?

Sheltered

Finally, what advice would you give to a person in a similar situation?

My advice would be to except what you cannot change or It will keep you from things you want to do. Took me to the age of 40 to wear capris. Do what you want life's to short not to


Sep 11, 2017

By: Wendy

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