Story about Incontinentia Pigmenti .

IP has changed our lives

Jan 14, 2018

By: Felicia77

Year Condition Began: -2016


I am middle affected by IP, but one of my daughters -Amma(2 years old) is severe affected by this genetic condition. She has neurological issues, antenatal strokes and a blood cerebral stroke on the 2 nd day of life. Now she is CP , quad tetraparesis and she had infantile spasms. The recent MRI shoes A MOTOR AREA AFFECTED ( IN THE RIGHT) AND AN EPILEPTICAL FOCAR IN THE OCCPITAL AREA.
She gets rehabilitation therapies.

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