Jenn's IH story

My name is Jennifer. I have had IH for almost 12 years. I have had multiple shunts, VP, VA, LP, LumboPleaural. I have probably had about 200 spinal taps since diangnosis. It has been a long road but I wake every morning and thank GOD that he has given me another day. This disease takes a lot away from me. I can't go anywhere without another adult because at anytime a headache or seizure could happen. I ended up starting to have seizures about 4 years into this disease. My life has changed so much but I cherish every moment I have with my daughter and family.