Is it easy to find a partner and/or maintain relationship when you have Joubert Syndrome?

People with experience in Joubert Syndrome give their opinion on whether it is easy or not to have a partner or to maintain a realationship when you are diagnosed of Joubert Syndrome. What are the possible difficulties in having a relationship?

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Couple and Joubert Syndrome

We have 5 adult children. 2 of our daughters have Joubert Syndrome. Suzie was born in 1981 and Nancy was born in 1986. They are #2 and #3 in our family. No one else on either side of our families have anything like Joubert Syndrome.

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3/6/17, 11:20 PM by azmomof5

JOUBERT SYNDROME CHILD WORK LIKE NORMAL CHILE

IN 2011 MY CHILD WAS SUFFERING FROM JOUBERT SYNDROME(aFTER DIAGNOSIS OF MRI) DOCTOR SAYS HE NEVER WALK /AND SPEAK. BUT IT IS COMPLETELY WRONG. MY CHILD IS NOW GOING TO SCHOOL HE IS IN CLASS ONE. ONLY DELAY PROBLEM. HE CAN DO EVERY THING BUT DELAY OF...

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3/21/18, 11:59 PM by akmishraw

MI CAMINO CON JOUBERT

Tengo 55 años, desde 2014 fui considerado paciente con ataxia espinocerebelosa; hasta que en 2022 pude correr un panel genético, el cual por, costoso no había podido hacer. En dicho panel apareció el gen TMEM67 como heterozigoto para SdeJoubert. ...

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9/19/24, 7:14 PM by Chamier

Is it easy to find a partner and/or maintain relationship when you have Joubert Syndrome?

People with experience in Joubert Syndrome give their opinion on whether it is easy or not to have a partner or to maintain a realationship when you are diagnosed of Joubert Syndrome. What are the possible difficulties in having a relationship?

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Couple and Joubert Syndrome

What is the life expectancy of someone with Joubert Syndrome?

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Celebrities with Joubert Syndrome

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Is Joubert Syndrome hereditary?

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Is Joubert Syndrome contagious?

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ICD10 code of Joubert Syndrome and ICD9 code

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Is there any natural treatment for Joubert Syndrome?

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Living with Joubert Syndrome. How to live with Joubert Syndrome?

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Joubert Syndrome diet. Is there a diet which improves the quality of life o...

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