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Is it advisable to do exercise when affected by Joubert Syndrome? Which activities would you suggest and how intense should they be?

See if it is advisable for people with Joubert Syndrome to practice sports and which ones are the most recommended if you have Joubert Syndrome

Joubert Syndrome sports
2 answers
Physical, occupational and Speech therapies are beneficial, and developmental delays could cause atrophies, hip displacement, tight tendons, scoliosis, low bone density, gastrointestinal dysfunction among other things, an active approach preventing these things from occurring due to prolonged time in non-Standing positions could be beneficial

Posted Mar 6, 2017 by Brett 1120
Translated from spanish Improve translation
Of course for a healthy lifestyle has q to be 80% nutrition, 20% physical activity and if it can do so stimulate the whole body, and he has more confidence THIS SYNDROME IS VERY MILD there is no q to see them as sick

Posted Aug 3, 2017 by Evelin 2000

Joubert Syndrome sports

Joubert Syndrome life expectancy

What is the life expectancy of someone with Joubert Syndrome?

4 answers
Celebrities with Joubert Syndrome

Celebrities with Joubert Syndrome

1 answer
Is Joubert Syndrome hereditary?

Is Joubert Syndrome hereditary?

3 answers
Is Joubert Syndrome contagious?

Is Joubert Syndrome contagious?

3 answers
ICD9 and ICD10 codes of Joubert Syndrome

ICD10 code of Joubert Syndrome and ICD9 code

2 answers
Natural treatment of Joubert Syndrome

Is there any natural treatment for Joubert Syndrome?

1 answer
Living with Joubert Syndrome

Living with Joubert Syndrome. How to live with Joubert Syndrome?

4 answers
Joubert Syndrome diet

Joubert Syndrome diet. Is there a diet which improves the quality of life o...

3 answers

World map of Joubert Syndrome

Find people with Joubert Syndrome through the map. Connect with them and share experiences. Join the Joubert Syndrome community.

Stories of Joubert Syndrome

JOUBERT SYNDROME STORIES
Joubert Syndrome stories
We have 5 adult children. 2 of our daughters have Joubert Syndrome. Suzie was born in 1981 and Nancy was born in 1986.  They are #2 and #3 in our family.  No one else on either side of our families have anything like Joubert Syndrome. 
Joubert Syndrome stories
IN 2011 MY CHILD WAS SUFFERING FROM JOUBERT SYNDROME(aFTER DIAGNOSIS OF MRI) DOCTOR SAYS HE NEVER WALK /AND SPEAK. BUT IT IS COMPLETELY WRONG. MY CHILD IS NOW GOING TO SCHOOL HE IS IN CLASS ONE. ONLY DELAY PROBLEM. HE CAN DO EVERY THING BUT DELAY OF...
Joubert Syndrome stories
Tengo 55 años, desde 2014 fui considerado paciente con ataxia espinocerebelosa; hasta que en 2022 pude correr un panel genético, el cual por, costoso no había podido hacer. En dicho panel apareció el gen TMEM67 como heterozigoto para SdeJoubert. ...

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JOUBERT SYNDROME FORUM

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