Living with Joubert Syndrome. How to live with Joubert Syndrome?

Yes you can be happy with Joubert syndrome. As far as advice on how, stop comparing, and accept yourself for who you are, different is not less. Never give up, there is always hope as long as you don't stop trying.

Living with Joubert syndrome can be tough at times but as you grow older it’s not that bad. I love meeting other people with Joubert syndrome and there’s even foundations to support people with Joubert syndrome like the Joubert syndrome and related disorders foundation, Joubert syndrome in Australia. It can be tough too because ocular motor apraxia sometimes comes with Joubert syndrome and duo to that I have to turn my head to the right to see things around me and sometimes (rarely) Joubert syndrome comes with nystagmus and duo to that it makes it really hard to read paragraphs! I flap my hands a lot too! I am proud of who I am! I met several people with Joubert syndrome thanks to the Joubert syndrome and related disorders foundation but most of the people were found randomly by me on social media! I worked so hard to where I am today with all the therapy’s I had to do and if I especially didn’t have speech therapy I wouldn’t be able to speak clearly like I am today. I am so grateful for everything god has offered me with my battle with Joubert syndrome!!