Can people with Joubert Syndrome work? What kind of work can they perform?
See how people with experience in Joubert Syndrome give their opinion about whether people with Joubert Syndrome can work and what kind of jobs are more appropriated for people with Joubert Syndrome
Joubert syndrome covers a wide spectrum of severity ranging from mild delays to severe disability. Those on the milder end of the spectrum can work wil minor or no accommodations while those on the more severe end probably won't be able to maintain a job.
I don't know because my bb is 6 months, but what I read says q if the person is born with the syndrome, and not notice anomalies Will be a healthy person and normal per if not what q do is full therapy and love and do not see them as disabled people but as people with a special gift and to have faith in q they can do everything normal
We have 5 adult children. 2 of our daughters have Joubert Syndrome. Suzie was born in 1981 and Nancy was born in 1986. They are #2 and #3 in our family. No one else on either side of our families have anything like Joubert Syndrome.
IN 2011 MY CHILD WAS SUFFERING FROM JOUBERT SYNDROME(aFTER DIAGNOSIS OF MRI)
DOCTOR SAYS HE NEVER WALK /AND SPEAK. BUT IT IS COMPLETELY WRONG. MY CHILD IS NOW GOING TO SCHOOL HE IS IN CLASS ONE. ONLY DELAY PROBLEM. HE CAN DO EVERY THING BUT DELAY OF...
Tengo 55 años, desde 2014 fui considerado paciente con ataxia espinocerebelosa; hasta que en 2022 pude correr un panel genético, el cual por, costoso no había podido hacer. En dicho panel apareció el gen TMEM67 como heterozigoto para SdeJoubert. ...