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Kallmann Syndrome stories
What can you say my story of how I was born as an Intersex/DSD person and living my life is as unique as the next person. I’m no different from anyone else, other than being born with an Intersex/ DSD (Disorders of Sexual development) from...
My name is Ivan. I'm a clinical psychologist. I'm 40 years old and I have Kallman's syndrome. Unfortunately, it was diagnosed only a couple of years ago (in 2009).
My first 36 years of life without the diagnosis were not so bad, however, ...
Views: 974 by Ivan
Short version to start with.....
Diagnosed at 23 at Royal Free Hospital in London, UK.
Live in Worcester UK, but originally from Plymouth UK.
I was dismissed as a "late developer" or "late bloomer" for all of my teenage years.
My anosmia ...
Views: 858 Nov 30, 2017, 4:31 PM by Neil Smith
When I was little and found out my Syndrome was a confused time, how doctors told me what my life will be and how could I live when been a grown up person. Now that I am 40 and knowing people that been there like me and talk about our story I can say...
I have a Portuguese blog where I talked about my syndrome and my desire to become mom.
Is called Cantinho dos Smurfs
Views: 566 by Maria
Kallmann Syndrome forum
We are currently seeking research participants who have been diagnosed with idiopathic hypogonadotropic hypogonadism (IHH), including Kallmann Syndrome (KS), for such a study. This study is being run through the Pennsylvania State University De...
Views: 616 Feb 3, 2016, 12:26 PM by Heather
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