What can you say my story of how I was born as an Intersex/DSD person and living my life is as unique as the next person. I’m no different from anyone else, other than being born with an Intersex/ DSD (Disorders of Sexual development) from...
My name is Ivan. I'm a clinical psychologist. I'm 40 years old and I have Kallman's syndrome. Unfortunately, it was diagnosed only a couple of years ago (in 2009).
My first 36 years of life without the diagnosis were not so bad, however, ...
Short version to start with.....
Diagnosed at 23 at Royal Free Hospital in London, UK.
Live in Worcester UK, but originally from Plymouth UK.
I was dismissed as a "late developer" or "late bloomer" for all of my teenage years.
My anosmia ...
When I was little and found out my Syndrome was a confused time, how doctors told me what my life will be and how could I live when been a grown up person. Now that I am 40 and knowing people that been there like me and talk about our story I can say...
We are currently seeking research participants who have been diagnosed with idiopathic hypogonadotropic hypogonadism (IHH), including Kallmann Syndrome (KS), for such a study. This study is being run through the Pennsylvania State University De...
23 people with Kallmann Syndrome have taken the SF36 survey. Mean of Kallmann Syndrome is 2256 points (63 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey
