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Klippel-Feil Syndrome stories
I am 24 years old and I live in Denver, Colorado. I was diagnosed with KFS since I was 2-4 and I have bilateral hearing loss with chronic respiratory illness. I am also a medical cannibis user, which may falter my breathing, but I am an active person...
Views: 665 Jan 12, 2016, 5:49 PM by Vic
I was diagnosed with kfs type 4 as a child. It was challenging. I was never able to do sports and was always treated like glass. Which made it hard to find friends. At age 15 I underwent a 16 hour extensive surgery to save my life. After I was suppos...
Views: 618 Apr 18, 2016, 6:23 PM by Val
Was diagnosed when he was couple days old. He had heart value that wouldn't closed and it healed on its own, he was born with multicyst kidney so he only has one kidney. Mental and development delays, 4th n 5th vertebrae infused giving him short neck...
Views: 608 Mar 23, 2017, 10:10 PM by Wyatt
she has been suffering tremendous pains and she hasn't find a doctor that can help her, she had a surgery but it was done wrong.
Views: 580 Dec 15, 2015, 6:28 AM by Veronica
Our daughter has Klippel-Feil c3-c6, torticoli, sleeping apnea, cervical ribs and fused ribs, spinal bifida occulta, and scoliosis which is cause by a extra vertebrae
Views: 519 Apr 6, 2016, 3:12 PM by Linda
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