No neck

I was diagnosed at birth. The short neck was obvious. I was found to have double ureters later on. I also have sprengals deformity. I was picked on constantly as a child. No one else in my family has it. I have four kids and none have been diagnosed with it although I’m pushing my daughter to get tested because she was found to have hearing loss in her right ear when she was 6 and we never really knew why.