A Klippel-Feil Syndrome story
Was diagnosed when he was couple days old. He had heart value that wouldn't closed and it healed on its own, he was born with multicyst kidney so he only has one kidney. Mental and development delays, 4th n 5th vertebrae infused giving him short neck, he has scoliosis. Right lazy eye. Left thumb undeveloped, went thro surgery to stabilize his thumb and gave him some webbing. Wears cochlear bahas to hear with. He has sleep apena n wears machine at nights.
Find people with Klippel-Feil Syndrome through the map. Connect with them and share experiences. Join the Klippel-Feil Syndrome community.