World map of Langerhans Cell Histiocytosis


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Langerhans Cell Histiocytosis stories


TRACY'S STORY


I am a mother of three very active children. My husband is in the Navy and was stationed in CT. I had a bad hip pain and went t9 the Dr. They did an MRI and found nothing. A year later we got stationed on WA and on my trip across I started having hor...

Views: 634 Jan 6, 2016, 11:30 PM by Tracy

DONICA'S STORY


I was diagnosed with what was then called Histiocytosis-x at the age of 2 1/2. I had it bilaterally of the mastoids and underwent chemotherapy for six months.

Views: 631 Dec 14, 2015, 2:40 PM by Donica

MY JOURNEY


i was 18 when I was diagnosed, 2 months before my 19th birthday. It shocked me when I heard the words and how they described it to me. I felt sick it felt like the world just stopped. But I started to deal with it. I've been fighting it since June 20...

Views: 625 Jan 14, 2016, 8:18 PM by Lauren

SUMMERS STORY


Summer started with pain in her right leg, took her to doctors, was put down to growing pains, after a cpl of weeks her left leg started sticking out at the bottom when she walked, the more she walked the more it stuck out, X-ray & scan were fine...

Views: 556 Jan 11, 2016, 7:20 PM by Summer

THATS ABOUT ENOUGH ABOUT ME


so, please tell me about you...

Views: 462 Mar 18, 2016, 12:15 AM by George Amoroso

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Langerhans Cell Histiocytosis forum


VETERANS AND LCH/PLCH


My pulmonary doctor has seen 4 cases of this at a hospital for maybe 100,000 vets. Face book shows about 15 of us on one page... I'd like to know how many folks served especially in the early 90's Gulf war 1 taking the anthrax vaccination 

Views: 389 Mar 18, 2016, 12:18 AM by George Amoroso

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