8
Which advice would you give to someone who has just been diagnosed with Larsen syndrome?
See some advice from people with experience in Larsen syndrome to people who have just been diagnosed with Larsen syndrome
Refer to the Larsen Syndrome Resource Center for information, photos, and articles that should help you understand more about LS:
www.larsensyndromeresourcecenter.com
www.larsensyndromeresourcecenter.com
Posted Mar 19, 2017 by Ellen 1000
Translated from spanish
Improve translation
If you're a mom or dad of a baby newly diagnosed with Larsen Syndrome and you're reading this, I'll only give one piece of advice: send your child from the first moment that the most important thing is never to give up.
The first few months and years can be complicated, I'm not going to hide, but always keep in mind that this condition is neither degenerative nor is why go to worse. On the contrary: you can achieve a quality of life very reasonable if you give with the computer right doctor who knows this syndrome.
Physiotherapy, technical aids, and much, much, much constancy and patience, and each day you'll progress a little more.
The first few months and years can be complicated, I'm not going to hide, but always keep in mind that this condition is neither degenerative nor is why go to worse. On the contrary: you can achieve a quality of life very reasonable if you give with the computer right doctor who knows this syndrome.
Physiotherapy, technical aids, and much, much, much constancy and patience, and each day you'll progress a little more.
Posted Mar 5, 2017 by Jorge Morato Cadenas 1050
