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Which advice would you give to someone who has just been diagnosed with Loeys Dietz syndrome?
See some advice from people with experience in Loeys Dietz syndrome to people who have just been diagnosed with Loeys Dietz syndrome
One day at a time. Some people have no symptoms; some people are greatly affected.
Posted May 12, 2019 by Sherri 800
Get a good team together that has knowledge of collective tissue disorders or LDS specifically. Email Dr Hal Dietz personally, he is very easy to reach and quick to respond. [email protected]
Make sure you get the best of following.
Make sure you get the best of following.
Posted May 12, 2019 by Derek 4050
Find the very best geneticists, cardiologists and health care pathways. Understand the condition, read up on it. Join groups who share data. Then, Risk prevention of accidents, injuries or worse, too.
Posted May 14, 2019 by Glenn 2500
It will work out
It’s a piece of the puzzle pulling other pieces into place
You’re not alone
It’s a piece of the puzzle pulling other pieces into place
You’re not alone
Posted May 16, 2019 by Vicki 1800
