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Living with Loeys Dietz syndrome. How to live with Loeys Dietz syndrome?

Can you be happy living with Loeys Dietz syndrome? What do you have to do to be happy with Loeys Dietz syndrome? Living with Loeys Dietz syndrome can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Loeys Dietz syndrome

Living with Loeys Dietz syndrome
5 answers
Live your life to the fullest possible. Remember, LDS is a Syndrome - something you have. It does not define who you are!

Posted Feb 6, 2018 by Helene 1600
Symptom management only. Pain management for joints, regular CTA/MRA to catch aneurysms. Low impact exercise. Heart healthy diet.

Posted May 12, 2019 by Sherri 800
Live everyday to is fullest. Don't let shortcomings effect your happiness, the is always a trade off of what you can and can't do. Make the special things you can do be fun for you and your loved ones. I always made my differences a good laugh. We are all destined for greatness. Sign up for studies and groups to help others. The National Institute of Health has ongoing studies to be a part of for those with LDS.

Posted May 12, 2019 by Derek 4050
Follow doctors advice. Medications, rest, not overly raising heart rate. Staying generally fit. Not carrying too much weight etc.

Posted May 14, 2019 by Glenn 2500
Follow your doctors advice
Exercise as able
Talk about your feelings and fears
Breathe

Posted May 16, 2019 by Vicki 1800

Living with Loeys Dietz syndrome

Loeys Dietz syndrome life expectancy

What is the life expectancy of someone with Loeys Dietz syndrome?

7 answers
Celebrities with Loeys Dietz syndrome

Celebrities with Loeys Dietz syndrome

4 answers
Is Loeys Dietz syndrome hereditary?

Is Loeys Dietz syndrome hereditary?

7 answers
Is Loeys Dietz syndrome contagious?

Is Loeys Dietz syndrome contagious?

7 answers
ICD9 and ICD10 codes of Loeys Dietz syndrome

ICD10 code of Loeys Dietz syndrome and ICD9 code

5 answers
Natural treatment of Loeys Dietz syndrome

Is there any natural treatment for Loeys Dietz syndrome?

4 answers
Loeys Dietz syndrome diet

Loeys Dietz syndrome diet. Is there a diet which improves the quality of li...

6 answers
History of Loeys Dietz syndrome

What is the history of Loeys Dietz syndrome?

4 answers

World map of Loeys Dietz syndrome

Find people with Loeys Dietz syndrome through the map. Connect with them and share experiences. Join the Loeys Dietz syndrome community.

Stories of Loeys Dietz syndrome

LOEYS DIETZ SYNDROME STORIES
Loeys Dietz syndrome stories
my family has lds my husband and 3 kids but the doctors say they dont now much about the disease
Loeys Dietz syndrome stories
I have a clinical diagnosis of Loeys-Dietz Syndrome as there has been no gene match up for me yet. I also really do not have any family to help search for a gene as those who probably were affected by it are no longer alive and I did not have any kid...

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Loeys Dietz syndrome forum

LOEYS DIETZ SYNDROME FORUM
Loeys Dietz syndrome forum
For details on the Aortic Dissection Awareness Week Events, please click Here For information about the speakers for the Medical Information day, please click Here.          ​ The John Ritter Foundation for Aortic Healt...

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