> Long QT Syndrome > Stories

Living with LQTS 3

I was diagnosed shortly after my father passed awayin 2005.  Several years after i had an ICD put in, becasue i began to have some episodes of passing out and my life has never been better. I was so depressed at first and scared, because all i thought was that i was going to die in my sleep like my father did. my brother also has lqts3 and had the icd implanted this past may. We had genetic testing done, to be sure that it was long qt, since my brothers EKG was almost normal. My EKG you could tell from that, that i had it.

World map of Long QT Syndrome


Find people with Long QT Syndrome through the map. Connect with them and share experiences. Join the Long QT Syndrome community.