Living with Medullary Sponge Kidney. How to live with Medullary Sponge Kidney?

As long as your pain is managed properly you can have a good life

Living happily with Medullary Sponge Kidney is easy for some and much harder for others and it affects everyone differently. You will have to find a way to manage your pain with a pain management clinic and a healthy diet as well as exercise.

You need a strong support system and helpwhen needed. With out that, like me as a single parent I struggle to survive.

How to live with msk? My only and best opinion on life with msk is to take it one day at a time do not live your life around the disease as uch as you possibly can because if you let it, it will take over your every day life and you will end up extremely depressed or much worse... do everything you can to stay healthy and fit, keep a strong record of your days with how the disease is with you as everyone that has msk is different but very similar with how the stages of chronic kidney disease is as it will only get worse as you age. Talk with your family doctor to find out what you able to use to help with any pain you may end up with over the years and figure out the best way to stay in shape so your body can handle the pain and down time that will be there while your passing a stone or if you need to treat a urinary tract infection or kidney infections as they are for most in stopabe and will happen regardless of what you do to keep yourself clean from everything outside the body that can cause a UTI because for some and my self rightnow end up going threw a unnamed stage of making stones that are infected there is nothing you can do about wether they wil have infection in them or not I have been making this kind of stone for around a year now and if you do have a UTI or kidney infection be careful about using strong antibiotics as some are very harmful to your digestive system and can cause C-diff.. you should also use probiotics that can help against the effects of antibiotics such as severe diarrhoea and C-diff..

Find a good team for your condition! Make sure your Nephrologist and Urologist are familiar with your disease and are willing to listen to your concerns.